Our mission is to support people affected by muscular dystrophy and neuromuscular disorders and endeavour to improve the quality of life of its members.

Member of World FSHD Alliance

Affiliated to LGMD Awareness Foundation

Affiliated to World Duchenne Organisation

Affiliated to Treat-NMD


Why bother getting a FREE genetic test?? 

The Muscular Dystrophy Foundation of South Africa is offering all persons diagnosed with Spinal Muscular Atrophy (SMA), Limb Girdle Muscular Dystrophy (LGMD) and Facioscapulohumeral Dystrophy (FSHD) the opportunity to get a free genetic test that will confirm their Muscular Dystrophy (MD) diagnosis.                         We know it’s never pleasant going through more medical stuff… but there are three great reasons why you should seriously consider this offer.

Knowledge is power                                                                                                                                             The more we know about our conditions, the better equipped we are to manage them. Genetic testing is detailed and accurate and clears up diagnosis confusion – including things you may not even know about.

Genetic tests are essential to access new genetic treatments                                                                       New genetic treatments are starting to emerge for different MD’s.                                                                                  A genetic test is the starting point to accessing new treatments. Nothing can happen without it.  The sooner you get one done, the better position you will be in to access treatments if and when they become available for your condition.

Getting tested helps our whole community                                                                                                    South Africa struggles a lot to diagnose people with MD correctly, and our lack of MD diagnostic data is holding all of us back.                                                                                                                                                                            The more detail we have about who has MD, the better positioned our country will be to help people living with MD to access the treatments that are already being used in many other parts of the world.                             Simply put, when you get your genetic test, you’re helping me. And when I get my test, I’m helping you. The more tests we get done, the more power we have as a community.

Contact us!                                                                                                                                                        Please discuss this offer seriously with your family and loved ones. If you would like to take advantage of the free testing opportunity, contact Gerda Brown at 011 472-9703 or

Muscular Dystrophy Foundation of South Africa is extremely grateful to the National Lotteries Commission (NLC) for the grant that was provided for the 2019/2020 funding period.

Kindly visit the National Lotteries Commission’s website and learn more about NLC funding priorities.