The Muscular Dystrophy Foundation of South Africa is a non-profit organisation that supports people affected by Muscular Dystrophy and Neuromuscular disorders and endeavours to improve the quality of lifestyle of its members.
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A New Era for SADA
The Muscular Dystrophy Foundation of South Africa is a member of the South Africa Disability Alliance (SADA) established in 2007 as a platform for discussion, joint planning, collaboration and consensus-seeking amongst key role players within the disability sector.
Read more here: http://www.mdsa.org.za/?page_id=657
The Duchenne MD Workshop 2013 – HIGHLIGHTS
International Speakers visited Gauteng on 5 February and Cape on 12 February 2013.
Helen Posselt is a physiotherapist who has specialised in the understanding, treatment and best prophylactic management of inherited neuromuscular conditions and in particular Duchenne muscular dystrophy.
Dr. Jonathan Finder trained in paediatrics and in paediatric respiratory disease. He has been on faculty at the University of Pittsburgh since 1993 and has been an attending pulmonologist at the Children’s Hospital of Pittsburgh since that time. He has worked closely with patients with neuromuscular diseases and was the lead author of the 2004 American Thoracic Society Consensus Statement on the Care of Patients with Duchenne Muscular Dystrophy. He has published many articles on respiratory aspects of this disease and has been a passionate advocate for these patients.
Dr. Doug Biggar’s clinical and research efforts focus on boys with DMD and their families. He participates on national and international panels to create standards of care for these boys to improve their outcomes and quality of life. His primary research focus is to understand the long-term benefits of corticosteroids in boys with DMD and how to manage better the side effects of treatment.
The workshop was well attended in both provinces and the presentations were professional and informative.
The workshop is available on DVD and can be ordered from your nearest branch.