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Note
The following sources are independent of the Muscular Dystrophy Foundation. They are reputable sites but we cannot vouch for the accuracy or suitability of information you may find on them, or on sites linked to them.
Information may concern prognoses and must be treated with sensitivity. Be VERY wary of any site that offers treatment or cure for any form of MD...always ask for independent, professional medical advice before you contact a site of this type. If you are not medically qualified and find an item that worries you then we urge you to discuss it with your doctor.
National and International Organisations
MD Association of Australia
Muscular Dystrophy Ireland
muscular-dystrophy.org
MD Association of the USA
MD Association of Canada
European Neuro Muscular Centre (the ENMC)
European Alliance of Muscular Dystrophy Associations (EAMDA)
MD Netherlands
World Alliance Neuromuscular Disorder Associations (WANDA)
World Forum Neuromuscular Disorders
Support Groups
The Duchenne Family Support Group
US based Duchenne Parent Project
CMTNet - Charcot Marie Tooth support group
CMT International UK site
X-Linked Myotubular Myopathy Resource Group
Association for Glycogen Storage Disease
The FSH Support Group
The (US based) Families of SMA group
Mitochondrial Support Group
The MD Adult Support Group
Dermatomyositis and Polymyositis Support Group
The Jennifer Trust for Spinal Muscular Atrophy
2003 European Muscle Conference
Ataxia Group
www.HopeforMD.org
Others
The following sites have links to numerous sites around the world
www.mdday.org
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